Newsletter: September 2025

Erin Zinn • October 23, 2025

 Newsletter - September 2025

Dear AMDAPP Members,


On September 9–10th, AMDAPP leadership was honored to join the Michael J. Fox Foundation’s Parkinson’s Policy Forum in Washington, D.C. Over two powerful days, we met with Senators and Representatives from our home states to advocate for sustained funding for Parkinson’s and Atypical Parkinson’s Disease research and care. Standing shoulder to shoulder with other healthcare providers, patients, care partners, and researchers sent a clear message: every voice counts and together, our voices are impossible to ignore!


One of the most moving moments came from former U.S. Representative Jennifer Wexton of Virginia, diagnosed with PSP in 2023. Using an augmentative and alternative communication (AAC) device with an AI-generated model of her own voice, she delivered a profound address that left the room silent and inspired. Rep. Wexton was instrumental in passing the Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton National Plan to End Parkinson’s Act that was signed into law on July 2, 2024. This law, now known as the National Parkinson’s Project. Despite this milestone, progress has been slowed by NIH budget cuts. Forum attendees emphasized the urgency of fully standing up the National Parkinson’s Project and called on Congress to hold the EPA accountable for protecting people from paraquat.


This invitation placed AMDAPP® at the table for national advocacy, alongside other leading organizations including the Parkinson’s Foundation, PMD Alliance, APDA, and Lewy Body Dementia Association, all working collectively to accelerate progress for people living with Parkinson’s disease.

We felt your presence with us in every meeting and hallway conversation. AMDAPP made meaningful connections across the Parkinson’s community, and we’re carrying that momentum forward! Please consider getting involved, see below for how to guide. 


With Gratitude,


Erin Zinn


Deputy Director


Read the rest of the newsletter  here.

By Erin Zinn November 25, 2025
The U.S. Department of Education defines a professional degree program in its 2025 to 2026 regulatory framework as a program that “signifies both completion of the academic requirements for beginning practice in a given profession and a level of professional skill beyond that normally required for a bachelor’s degree; is generally at the doctoral level; requires at least six academic years of postsecondary education including at least two years at the post-baccalaureate level; and typically leads to licensure in a recognized profession.” The Association of Movement Disorder Advanced Practice Providers (AMDAPP) is concerned that, as applied in recent rulemaking, this definition may exclude several graduate-level programs that educate clinicians who are central to movement-disorders care. These include programs in advanced nursing and nurse practitioner education, physician assistant education, physical therapy, occupational therapy, speech-language pathology, audiology, public health and counseling and social work. These professions require advanced education, national certification, state licensure and clinical expertise that align closely with the criteria outlined in the Department’s definition. Movement-disorders care relies on a multidisciplinary team with specialized training. Every one of the professions listed above contributes significantly to evaluating symptoms, managing treatment plans, providing rehabilitation therapies, supporting communication and swallowing and addressing cognitive, emotional and social needs. For individuals living with Parkinson’s disease and related conditions, these services are essential to maintaining safety, independence and quality of life.  If these graduate programs are not recognized as professional degree programs, students may face reduced access to federal financial aid. This may contribute to workforce shortages in areas of care where patient demand is already increasing. Longer wait times, fewer available specialists and limited access to comprehensive services are all potential consequences for patients and clinics across the country, at a time when movement-disorders care is already marked by a significant shortage of trained clinicians and growing challenges in timely access to care. AMDAPP respectfully requests continued discussion and clarification around the Department’s classification of professional degree programs to ensure that it accurately reflects the training, licensure requirements and responsibilities of these essential healthcare professions. We encourage clinicians, educators, students and patient advocates to stay informed, to share information about how these changes may affect patient access and training and to communicate their concerns with their members of Congress so that the full impact on the movement-disorders community is understood.
By Erin Zinn October 28, 2025
Newsletter: October 2025
By Erin Zinn October 28, 2025
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