Newsletter: September 2025

Erin Zinn • October 23, 2025

 Newsletter - September 2025

Dear AMDAPP Members,


On September 9–10th, AMDAPP leadership was honored to join the Michael J. Fox Foundation’s Parkinson’s Policy Forum in Washington, D.C. Over two powerful days, we met with Senators and Representatives from our home states to advocate for sustained funding for Parkinson’s and Atypical Parkinson’s Disease research and care. Standing shoulder to shoulder with other healthcare providers, patients, care partners, and researchers sent a clear message: every voice counts and together, our voices are impossible to ignore!


One of the most moving moments came from former U.S. Representative Jennifer Wexton of Virginia, diagnosed with PSP in 2023. Using an augmentative and alternative communication (AAC) device with an AI-generated model of her own voice, she delivered a profound address that left the room silent and inspired. Rep. Wexton was instrumental in passing the Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton National Plan to End Parkinson’s Act that was signed into law on July 2, 2024. This law, now known as the National Parkinson’s Project. Despite this milestone, progress has been slowed by NIH budget cuts. Forum attendees emphasized the urgency of fully standing up the National Parkinson’s Project and called on Congress to hold the EPA accountable for protecting people from paraquat.


This invitation placed AMDAPP® at the table for national advocacy, alongside other leading organizations including the Parkinson’s Foundation, PMD Alliance, APDA, and Lewy Body Dementia Association, all working collectively to accelerate progress for people living with Parkinson’s disease.

We felt your presence with us in every meeting and hallway conversation. AMDAPP made meaningful connections across the Parkinson’s community, and we’re carrying that momentum forward! Please consider getting involved, see below for how to guide. 


With Gratitude,


Erin Zinn


Deputy Director


Read the rest of the newsletter  here.

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